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A startling fact about ALS is that well over 90% of the people afflicted with this disease opt to die rather than use a ventilator to breathe for them when the diaphragm becomes to weak to pump the lungs. A significant reason for this is that the perception of life on a vent is pretty dismal. Across the country, the only places to provide care to a vented person are hospitals (or worse) - not an inviting living environment. A prominent nursing home provider in the Boston area is teamed up with the ALS Association in MA to create a new concept in residential care. This is HUGE! In the near future, a person with ALS (pALS), will have a real reason to look forward to a long life.

Channel: News & Politics
Uploaded: January 1, 1970 at 7:29 am
Author: smoothsaling

Length: 39:42
Rating: 4.70
Views: 7575

Tags: ALS  amyotrophic  gehrig  group  home  nursing  tracheotomy  vent  ventilator  

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maypema (January 1, 1970 at 7:29 am)
I would love to see the final design which will allow people with ALS to live more fully and freely. I care for people with ALS in Colorado. I am interested in learning how it feels for people with ALS to be in such a home. Will there be room for the family or just the person with ALS? Maya RN
mnccarna (January 1, 1970 at 7:29 am)
Thanks for posting this! I'll be watching for further developments in the ALS house. I wish you well in your journey with ALS. Montana Carol
mftravis2 (January 1, 1970 at 7:29 am)
Kudos to posting this to YouTube Steve!--Mike
ManicGrasshopper (January 1, 1970 at 7:29 am)
What a worthy cause. I am in awe over the togetherness of this venture. Kudos to all involved, and God Bless.

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